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![]() JOAN’S BLOG – MON/TUES.,JANUARY 19/20, 2009 – DOING SOMETHING I WANT TO DO In light of Monday’s message board topic in which I strongly re-iterated this website’s strict ban Although my husband has a totally different perspective on this issue, my perspective is that I have given up who I am, my future, my marriage, my freedom to do what I want to do when I want to do it, with whom I wish to do it – all in the name of Alzheimer’s Disease. I do love our friends and activities, but there are many times when I would prefer to stay home On Tuesday, January 20th, a new president is going to be inaugurated, and for my own personal reasons, I want to watch all of the activities on television LIVE. We do not have DVR (long story – fledgling cable company), but even if we did, I would still want to watch it live. It just so happens that Tuesday is our support group meeting Just once during this Alzheimer journey, I would like to do something I want to do in lieu of Alzheimer’s activities. He is so self-centered now that he honestly does not care if I stay home as long as he gets to go to group and lunch. I was surprised at the reaction I got from my support group. They think I should attend group and watch the inauguration on the news I am sorry if I sound petulant, but my life has been turned over to, and upside down because of, Alzheimer’s Disease. I read, write, talk, breathe Alzheimer’s Disease. It is my choice to do so; I enjoy it; it is rewarding and fulfilling, but for one day at least, I feel I should have the freedom to step out of the Alzheimer’s World and do something unrelated to AD that I want to do. And that is exactly what I intend to do on Tuesday. Feedback to joan@thealzheimerspouse.com
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